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- A ONE IN A MILLION YOU TUBE HOW TO
- A ONE IN A MILLION YOU TUBE SKIN
- A ONE IN A MILLION YOU TUBE SERIES
Austin and Elena have Goldenhar syndrome, a rare disease in which development of the ear, nose, soft palate, lip, and jaw can be incomplete.
A ONE IN A MILLION YOU TUBE HOW TO
Together, they travel to Chicago and learn how to drive a specially adapted vehicle – an exciting first taste of the independence they crave.īoth Austin and Elena’s mothers were told their children may not survive infancy, but both proved the doctors wrong.
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Now 21, both girls are feeling constrained by their condition and want to learn how to become independent adults. Before the age of 3, they had broken over 300 bones between them. Tiffany and Destiny have the one of the most severe types of osteogenesis imperfecta. Will they both find the support and understanding they are looking for?
A ONE IN A MILLION YOU TUBE SKIN
Both Bobbi and Kenny go through a grueling daily skin route of bathing, exfoliating and moisturizing that can take up to 2 hours. Their skin builds up rapidly and sheds as large, thick scales. Also known as ‘the fish scale disease’, this skin disorder causes scaling of the skin that can lead to deadly infections. The boys’ mothers found each other on Facebook, and thought their sons looked like twins! Both families cannot wait to share tips on surgeries, parenting, and living with SJS day-to-day.īobbi of Arizona and Kenny of New Jersey, both suffering from lamellar ichthyosis. This extremely rare medical condition means the young boys have muscles that are permanently and painfully contracted, respiratory issues, and painful fixed joints. Meet the remarkable people who find out they’re TWO IN A MILLION:Ī condition so rare there are fewer than 100 cases worldwide, both Giovanni and Owen suffer from Schwartz Jampel syndrome. The connections they make are powerful beyond imagination.
A ONE IN A MILLION YOU TUBE SERIES
This new series follows the powerful journey of those who live with some of the world’s most unusual disorders, and brings unique insight into the intimate journey of these extraordinary people. In each episode of the new TLC series TWO IN A MILLION, premiering on Wednesday, April 6 at 10/9c, two people who share the same medical struggles meet and spend one week together, sharing hardships and incredible triumphs, visiting world-renowned doctors, and finding answers to important questions.
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New York, NY – Imagine living with one of the rarest medical conditions in the world having no one to confide in who understands the pain, struggles, and isolation of everyday life.
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